Wilson America and his family
Wilson America and his family

Wilson America is father of 7 children with nodding syndrome, Mundri, South Sudan, 2018.

Abawo Joy Ramadan
Abawo Joy Ramadan

Abawo (aged between 15 or 16) suffers from nodding syndrome, and the bandage wrapped around her left hand conceals a severe burn injury, which she sustained after falling into a fire during a seizure, Mundri District, South Sudan, 2018.

Zaina Sura
Zaina Sura

Zaina (18) suffers from nodding syndrome, Mundri District, South Sudan, 2018.

Elina Salowa
Elina Salowa

Elina (28) suffers from nodding syndrome and shows the burns she sustained after falling in a fire during a seizure, Mundri District, South Sudan, 2018.

Sylvester America
Sylvester America

Wilson America’s son, Sylvester (24), suffers from nodding syndrome, Mundri, South Sudan, 2018.

Hakim Morison
Hakim Morison

Disability field officer for the Sudan Evangelical Mission (SEM), a local non governmental organisation that works with persons with disabilities in the Mundri area, Mundri, South Sudan, 2018.

Zaina Sura
Zaina Sura

Zaina (18) suffers from nodding syndrome, and the injuries on her hands and arm were sustained after falling into a fire during a seizure, Mundri District, South Sudan, 2018.

Brothers
Brothers

From left to right: Clement, Juma and Sylvester America, Mundri, South Sudan, 2018.

Mary Julius
Mary Julius

Mary (25) suffers from nodding syndrome, Mundri, South Sudan, 2018.

Mary and her two sisters, are the daughters of Wilson America’s brother, who died in a motorcycle accident in 2010. After his death, Wilson took in his nieces, and, together with his wife Janet, now takes cares of them.

Selivia Obo
Selivia Obo

Selivia (22) suffers from nodding syndrome, Mundri District, South Sudan, 2018.

Selivia’s four siblings also suffer from the disease. She sustained the injuries on her left arm after falling into a fire during a seizure.

Charlie's grave
Charlie's grave

Wilson America and his wife, Janet, stand next to the grave of their eldest son, Charlie, who died from nodding syndrome, after suffering from a series of seizures that lasted for 72 hours, Mundri, South Sudan, 2018.

Left to right: Joanna, Mary and Ruth Julius, Samia
Left to right: Joanna, Mary and Ruth Julius, Samia

Daughters of Wilson America’s brother, along with Wilson’s own daughter, Samia, sit in front of a tree in their family compound, Mundri, South Sudan, 2018.

Gbokosoro Clement
Gbokosoro Clement

Gbokosoro (5) suffers from nodding syndrome, Mundri District, South Sudan, 2018.

The wounds on his face were caused by a fall during a seizure, one of the most common causes of death for nodding syndrome patients, who, often left unattended while parents are working, will fall in a fire, or a river or lake.

Wilson America
Wilson America

Wilson (64) is father of 7 children with nodding syndrome, Mundri, South Sudan, 2018.

Wilson & Sylvester
Wilson & Sylvester

Wilson America with his son Sylvester, Mundri, South Sudan, 2018.

Joanna's pill
Joanna's pill

Joanna holds the anti-convulsant medication she takes whenever it is available, Mundri, South Sudan, 2018.

Due to the fact that the cause of nodding syndrome is not yet known, treatment is focussed on managing the disease’s symptoms.

Gbokosoro & Doris
Gbokosoro & Doris

Doris Clement carries her son, Gbokosoro, who has nodding syndrome, Mundri District, South Sudan, 2018.

Lunch
Lunch

A relative, who does not suffer from nodding syndrome, cooks porridge for lunch, while Joanna Julius looks on, Mundri, South Sudan, 2018.

Preparing Lunch
Preparing Lunch

Porridge is cooked for lunch, Mundri, South Sudan, 2018. Food or hunger is one of the main triggers of a nodding syndrome seizure, the other being cold.

Juma & Joanna
Juma & Joanna

Juma Wilson and Joanna Julius wait for their lunch, Mundri, South Sudan, 2018.

Mary Julius
Mary Julius

Mary Julius eats porridge for lunch, Mundri, South Sudan, 2018.

Sylvester
Sylvester

Sylvester Wilson lies on his specially adapted bed, Mundri, South Sudan, 2018.

Elina & mother
Elina & mother

Elina Salowa (28) with her mother, Mundri District, South Sudan, 2018. Elina suffers from nodding syndrome.

Lucia Obo
Lucia Obo

Lucia Obo (19) suffers from nodding syndrome, Mundri District, South Sudan, 2018. Lucia is one of five children, all with nodding syndrome.

Steven Obo
Steven Obo

Steven Obo (17) suffers from nodding syndrome, Mundri District, South Sudan, 2018. Steven is one of five children, all with nodding syndrome.

Sarah Dawa
Sarah Dawa

Sarah Dawa (25) Sudan Evangelical Mission (SEM) field worker, Mundri, South Sudan, 2018.

Abraham Opi Varikosi
Abraham Opi Varikosi

Abraham (20), during class, Mundri District, South Sudan, 2018. Abraham suffers from nodding syndrome.

Wilson America and his family
Abawo Joy Ramadan
Zaina Sura
Elina Salowa
Sylvester America
Hakim Morison
Zaina Sura
Brothers
Mary Julius
Selivia Obo
Charlie's grave
Left to right: Joanna, Mary and Ruth Julius, Samia
Gbokosoro Clement
Wilson America
Wilson & Sylvester
Joanna's pill
Gbokosoro & Doris
Lunch
Preparing Lunch
Juma & Joanna
Mary Julius
Sylvester
Elina & mother
Lucia Obo
Steven Obo
Sarah Dawa
Abraham Opi Varikosi
Wilson America and his family

Wilson America is father of 7 children with nodding syndrome, Mundri, South Sudan, 2018.

Abawo Joy Ramadan

Abawo (aged between 15 or 16) suffers from nodding syndrome, and the bandage wrapped around her left hand conceals a severe burn injury, which she sustained after falling into a fire during a seizure, Mundri District, South Sudan, 2018.

Zaina Sura

Zaina (18) suffers from nodding syndrome, Mundri District, South Sudan, 2018.

Elina Salowa

Elina (28) suffers from nodding syndrome and shows the burns she sustained after falling in a fire during a seizure, Mundri District, South Sudan, 2018.

Sylvester America

Wilson America’s son, Sylvester (24), suffers from nodding syndrome, Mundri, South Sudan, 2018.

Hakim Morison

Disability field officer for the Sudan Evangelical Mission (SEM), a local non governmental organisation that works with persons with disabilities in the Mundri area, Mundri, South Sudan, 2018.

Zaina Sura

Zaina (18) suffers from nodding syndrome, and the injuries on her hands and arm were sustained after falling into a fire during a seizure, Mundri District, South Sudan, 2018.

Brothers

From left to right: Clement, Juma and Sylvester America, Mundri, South Sudan, 2018.

Mary Julius

Mary (25) suffers from nodding syndrome, Mundri, South Sudan, 2018.

Mary and her two sisters, are the daughters of Wilson America’s brother, who died in a motorcycle accident in 2010. After his death, Wilson took in his nieces, and, together with his wife Janet, now takes cares of them.

Selivia Obo

Selivia (22) suffers from nodding syndrome, Mundri District, South Sudan, 2018.

Selivia’s four siblings also suffer from the disease. She sustained the injuries on her left arm after falling into a fire during a seizure.

Charlie's grave

Wilson America and his wife, Janet, stand next to the grave of their eldest son, Charlie, who died from nodding syndrome, after suffering from a series of seizures that lasted for 72 hours, Mundri, South Sudan, 2018.

Left to right: Joanna, Mary and Ruth Julius, Samia

Daughters of Wilson America’s brother, along with Wilson’s own daughter, Samia, sit in front of a tree in their family compound, Mundri, South Sudan, 2018.

Gbokosoro Clement

Gbokosoro (5) suffers from nodding syndrome, Mundri District, South Sudan, 2018.

The wounds on his face were caused by a fall during a seizure, one of the most common causes of death for nodding syndrome patients, who, often left unattended while parents are working, will fall in a fire, or a river or lake.

Wilson America

Wilson (64) is father of 7 children with nodding syndrome, Mundri, South Sudan, 2018.

Wilson & Sylvester

Wilson America with his son Sylvester, Mundri, South Sudan, 2018.

Joanna's pill

Joanna holds the anti-convulsant medication she takes whenever it is available, Mundri, South Sudan, 2018.

Due to the fact that the cause of nodding syndrome is not yet known, treatment is focussed on managing the disease’s symptoms.

Gbokosoro & Doris

Doris Clement carries her son, Gbokosoro, who has nodding syndrome, Mundri District, South Sudan, 2018.

Lunch

A relative, who does not suffer from nodding syndrome, cooks porridge for lunch, while Joanna Julius looks on, Mundri, South Sudan, 2018.

Preparing Lunch

Porridge is cooked for lunch, Mundri, South Sudan, 2018. Food or hunger is one of the main triggers of a nodding syndrome seizure, the other being cold.

Juma & Joanna

Juma Wilson and Joanna Julius wait for their lunch, Mundri, South Sudan, 2018.

Mary Julius

Mary Julius eats porridge for lunch, Mundri, South Sudan, 2018.

Sylvester

Sylvester Wilson lies on his specially adapted bed, Mundri, South Sudan, 2018.

Elina & mother

Elina Salowa (28) with her mother, Mundri District, South Sudan, 2018. Elina suffers from nodding syndrome.

Lucia Obo

Lucia Obo (19) suffers from nodding syndrome, Mundri District, South Sudan, 2018. Lucia is one of five children, all with nodding syndrome.

Steven Obo

Steven Obo (17) suffers from nodding syndrome, Mundri District, South Sudan, 2018. Steven is one of five children, all with nodding syndrome.

Sarah Dawa

Sarah Dawa (25) Sudan Evangelical Mission (SEM) field worker, Mundri, South Sudan, 2018.

Abraham Opi Varikosi

Abraham (20), during class, Mundri District, South Sudan, 2018. Abraham suffers from nodding syndrome.

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